No Baby Blisters funds direct medical relief for children with epidermolysis bullosa — pain medicine, specialist bandages and the nutrition wound healing demands. Not one day of it can be skipped.
Children we support. Photos shared by their families.
The disease
EB is genetic. The skin lacks the protein anchors that hold its layers together, so it separates and blisters at the smallest friction — a hug, a waistband, a spoon against the lip.
Children born with it are called butterfly children, because their skin is as fragile as a butterfly wing. In the severe forms, wounds cover most of the body, every bandage change takes hours, and blood loss is heavy enough to need transfusions.
There is no cure yet. What exists is relief — pain medicine so a child can sleep, and non-adherent bandages that let wounds close instead of infecting. Both run out. That is the whole problem, and the whole reason this organization exists.
Who we help
They live in places where free healthcare does not exist and where no other charity arrived. Every photograph here was shared by the family.
Proof
Baby John was three days old when his father wrote to us. The blister wound on his right leg had left no skin from his lower ribs to the tips of his toes, and every bandage change tore more away — enlarging the wound and raising the risk of death from infection and dehydration.
He had been in hospital three weeks with no access to the ointments and advanced dressings that could help. Donations funded them immediately. The leg was saved, and with it his life.
His fight is not over — he lives in bandages, in pain, under constant threat of infection. But this is what a donation buys, and this is why it cannot arrive late.
Our founder
Aaron Tabor, MD is an NIH-funded skin researcher and the founder and CEO of GENIE Therapeutics, a biotechnology company developing treatments for skin scarring and pigmentation.
While developing gene therapy drugs he found something he had not expected: thousands of children with rare diseases, in critical condition, living in poverty in countries with no free healthcare — and with no charity reaching them at all. Parents with nowhere to turn, many of them begging for the price of a bandage. He founded No Baby Blisters to reach exactly those children.
Memberships listed for background only and do not imply endorsement: The Johns Hopkins Medical & Surgical Association · American Society for Gene and Cell Therapy · American Medical Association.
Research
Relief keeps children alive today. A cure is what ends this. Because 500,000 people live with EB, any cure that works has to be affordable — most research to date would cost far more than these families could ever pay.
What you see on the skin is also happening inside — mouth, throat, digestive tract. Creams treat a symptom; a systemic cure is what is needed.
Override the mutated skin-gene proteins with healthy ones, so the skin produces the anchors that keep it from blistering off.
Research into low-cost natural compounds that reduce inflammation and itching and speed wound healing — so no child is priced out of relief.
Our research team includes physicians holding patents in genetic skin therapy and specialists in FDA approval pathways.
Transparency
You do not have to take our word for any of this. The registration is public, the financials are audited and published, and the work is named in the peer-reviewed literature.
A one-time gift covers days without pain. A monthly one covers the year — and monthly is what stops the supply from ever breaking.
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No Baby Blisters